Today, I threw my older children at my best friend who was
having a bad day. Just one of those days we all have. She didn’t tell me she
was having one of those days until AFTER I traveled 2 hours away from her and
was finishing up with our second of three appointments…she is my best friend
and I love her forever!
Today, I met a sweet mother and her 2-year-old son who
pushes himself into everyone’s lives around him to bring conversation and most
importantly friendship wherever he goes! He has SMA (spinal muscular atrophy).
Look it up here. He has this spark about him that I have rarely seen. His eyes light
up and he is genuinely happy to see you, meet you and speak to you. But most
importantly, I see we met for a reason. Here was a sweet mama who sees the same
neurologist as us, and has a miraculous story as well. We made a connection. It
was a relief to meet her and be able to share our lives. I look forward to
speaking to her more. Find his story here.
Today, our daughter is one step closer to a feeding G-tube.
She is not gaining weight, but also not losing weight. She grew 1 inch in 2
months, when it had taken her 6 months to grow 1 inch previously. Josslyn is
thrilled with the idea of having a tube. SERIOUSLY. I spoke to her about it
months ago and equated it with an umbilical cord: “You’re going to have a
special tube that takes in food straight to your belly just like when you were
in mommy’s tummy! You don’t have to chew it or anything!” She squealed with
delight and not exasperation like I thought she would. In that moment I saw God’s
gentle and loving spirit glow even brighter in her. She’s amazing. (I wish I had
it on video! I am thankful Joel was able to hear her. I think that’s what
helped him accept it.)
Today, I scheduled 7 appointments and rescheduled 1
appointment. I still have 2 appointments to schedule. They have a wait list, so
I’ll be answering my phone any time it rings in the next few days or weeks.
There won’t be the option to just wait and see who leaves a message. That could
add another week or so.
Today, I was overwhelmed by my family and friends offers to
help. My best friend offered to take my big kids for any and all appointments
coming up. My aunt and uncle offered to help in any way possible. My friends
from all around the world have been praying for today.
Today, my son prayed to God, thanking Him for the time
Josslyn and I got to spend together. Dylan was not upset that I was gone for
the day, but thankful. This is BIG people! The Holy Spirit has been working on
him lately…it’s like a Holy Growth Spurt! (Ha!)
Today, I didn’t come home and sit around worrying about the
next appointments. I didn’t google G-tubes. I didn’t throw on my pjs and go to
bed. I got dinner together, helped with showers & pjs. I unloaded and reloaded
the dishwasher. I scrubbed the pots that have been sitting, for a day, dirty on
the counter. I listened and read along with my big kids to their books they
each picked out, and then read aloud a chapter from the book we are reading
together. After I put the kids to bed, I folded laundry and talked to my
husband. I got ready for bed and felt compelled to write…because today was a
good day. Today God gave me a tiring but good day. He gave me peace. He gave
me strength. He gave me all of these people in my life. He orchestrated today.
My God is an awesome God.
